CAESAR was born on August 1st, 2008 in Providence(RI) in the United States. His parents are Lucas and Aline. He has two sisters, Maria-Anita and Helen aged 6 and 2 respectively.
He was born with a form of chronic anemia called sickle cell anemia. In 2011, at the age of 2, he started taking violin lessons, and at 4 he was playing Vivaldi. Pretty much around at that time (5) he started doing Math 3rd Grade (he does Kumon since 2, started at the same time of violin) and got a Karate black belt. He was so happy child, very active, doing everything with a unique passion that was amazing everyone around him.
He never needed to be in a rush to the hospital due to the anemia before. However,
However, the health complication started after 4 with the first acute stroke hitting him when he was not even 5 and a few months later the second one. The 1st and 2nd were more acutely without much complications other and weakening his right limbs. The 3rd stroke came about 6 months after the 2nd. During the third stroke (June 2014), he was mishandled in the previous hospital where he was taken – resulting in further complications that affected, mainly, the control of his arms and legs — the right site more severely. The only thing left there were hope and a test for real unconditional love from his family. His angle sister and best friend, Maria-Anita, is like a piece of love around him all the time in the hospital supporting him.
At that point, his father had to stop working as a neuroscientist and started to support him fully: from being his personal physical therapist who taught him how to move his legs, hold a pencil, a spoon, to walk again, to play his violin. In September 2016, he played for the most prestigious violinist of the world and his idol: Itzhak Perlman.
Although it’s full of evidence that his passion for music was a kind of motor for him to fight back, without the support of so many nice folks, to whom we are so THANKFUL, it’s hard to imagine him overcoming so much on his journey.
Caesar’s journey is not over yet. We are raising funds for his bone marrow transplant that will help him live normally again. We do have everything, except the money to move ahead with the transplant. It must be done in 2017 because he cannot stay too much longer on the monthly blood transfusion sort of protocol, though it helps to decrease the chances of new strokes. However, it poses other health concerns as well as it doesn’t cure the anemia that he was born with.
Thank you very much and God may bless you and us all,
Caesar Sant’s father, Lucas